from sept 25 to 27, 2024

Data Privacy Policy

EU-MIND is sensitive to the protection of your personal data and takes care to process only what is necessary for the purposes for which your data is processed. These purposes are strictly in line with EU-MIND’s missions. Our privacy policy aims to inform you about :

  1. Our application of the General Data Protection Regulation (GDPR), in force since May 25, 2018, as well as the “Informatique et Libertés” law of January 6, 1978,
  2. The data we process and the reasons for such processing,
  3. How the data is processed and used,
  4. Your rights to this data and how to exercise these rights.

Our personal data protection policy applies to all processing of data collected via our websites, applications and services, published and used by EU-MIND.

As European legislation evolves, our data protection policy is regularly updated to comply with current regulations.

This page dedicated to our privacy policy aims to answer any questions you may have concerning the protection of your data: What data is collected? By whom and why? How long is it kept? On what legal grounds? How do you configure your cookies?

If you have any queries or complaints, please contact us at dpo@eu-mind.org.



Before going into detail about our personal data protection policy, it is important to master the associated vocabulary:

  • Personal data: according to the CNIL, personal data is any information relating directly or indirectly to a natural person, enabling that person to be identified (such as a name, telephone number, photograph or postal address).
  • Identifiable natural person: a natural person (you) who can be identified directly or indirectly by means of data.
  • Cookie: a small computer file associated with the website you are visiting, which is stored on your terminal (computer, telephone or tablet) and which makes it possible to obtain information linked to your browsing.
  • Data processing: data processing is any action performed on data, such as consulting, collecting, using or storing it.



EU-MIND acts transparently and ethically. We know that when you fill in a form on one of our web or print media, you are placing your trust in us. We take this act very seriously. That’s why we make the security and confidentiality of your personal data a top priority.

We are committed to:

  • Establish the most transparent policy possible on how we collect and use your data, as well as on your various rights, and how to apply them,
  • Only process the data we strictly need,
  • Only process data for explicit, legitimate, specific and useful purposes,
  • Only collect data in a fair and lawful manner,
  • Keep data only for as long as is necessary for the purposes for which it was collected and for which it is to be processed (or, where applicable, for as long as is required by law),
  • To communicate to our service providers, partners or third parties only the data they strictly require in the context of our activities,
  • Not to communicate, lend, exchange, give or resell your data to third parties outside the EU-MIND, without informing you in advance.

To prevent any breach of your personal data, we have implemented several measures:

  • Appoint Mrs. Magali Dumont as the Data Protection Officer (DPO) in charge of monitoring GDPR compliance,
  • Raise awareness of EU-MIND’s uses and best practices among all its bodies and partners,
  • Conduct an internal audit to improve the security of personal data collected,
  • Engage with partners (subcontractors) who respect RGPD regulations,
  • Update all our monitoring tools to comply with the law in force,
  • Ensure a high level of data storage security.



1. Why does the EU-MIND process this data?

The personal data collected by EU-MIND enables us, among other things, to:

  • Manage registrations for our information campaigns,
  • Carry out marketing campaigns to promote the initiative,
  • Enforce your right to modify or delete your personal data,
  • Manage donor payment methods,
  • Respond to your requests sent via the contact form,
  • Provide you with an optimal browsing experience on our website,
  • Carry out statistical analyses of visits and donations to our site,
  • Organize online or face-to-face events,
  • Invite scientists to submit their projects in response to our calls for applications,

More generally, your personal data is collected for communication purposes and to meet EU-MIND’s mission.


2. What personal data does EU-MIND collect?

We collect personal data when you fill in one of our forms to register for a newsletter, an event, to contact us, to reply to a call for applications or via cookies.


Several types of personal data may be collected directly on the EU-MIND website and other digital and printed solutions we use, including:

  • Identity-related data (surname, first name, CV)
  • Contact details (postal address, city of residence, telephone number and e-mail address)
  • Data related to your professional life: job title and structure identification
  • Bank details and payment information
  • The amount of your payment
  • Data enabling us to manage requests for access, rectification and opposition.


Most of the indirect data we collect is via cookies, when you visit our website. This data provides information about your browsing habits:

  • Electronic identification data (IP address, geographical area, etc.)
  • Data relating to your browsing preferences
  • Data relating to your activity on our website (pages visited, reading time, etc.).

We use 4 types of cookies on our website:

  • Internal cookies required by www.eu-mind.org to ensure optimal site performance
  • Third-party cookies for audience measurement and online activity tracking (Google Analytics)
  • Third-party cookies designed to enhance interactivity between our website and various multimedia content (Instagram, Twitter, LinkedIn)
  • Third-party cookies designed to optimize and better target our marketing and donation campaigns (Meta Group, Google etc.)

To find out more about the privacy policies of the above-mentioned subcontractors and to learn more about the purposes of use, the nature of the personal data collected and your rights, please consult the following links:

Prestataires Politique de confidentialités
Google https://policies.google.com/privacy?hl=fr
Groupe Meta https://www.facebook.com/privacy/policy/
X https://twitter.com/fr/privacy
LinkedIn https://fr.linkedin.com/legal/privacy-policy
Weezevent https://weezevent.com/fr/politique-de-confidentialite/
Mailchimp https://www.intuit.com/privacy/statement/


How can I refuse cookies?

You can disable the use of cookies by selecting the appropriate settings on your browser. However, deactivating cookies will prevent you from using certain functions on our site, including access to all forms. To find out more, consult your browser’s help center.


3. What is the legal basis for processing your data?

EU-MIND processes personal data only when it is required for one of the following legal purposes:

  • Processing is necessary for the performance of our mission in the public interest,
  • Your informed and explicit consent,
  • The existence of a contractual relationship,
  • Legitimate interest in carrying out our activities and missions.


4. Retention period of collected data

We keep your personal data only for as long as is necessary to process the purposes set out in point 1, or as required by current legislation. This applies to :

  • Communication: data relating to our contacts will be deleted within 10 years of the last contact,
  • Event registration data: this is kept for a maximum of one year,
  • Cookies: data collected is kept for a maximum of 13 months,
  • Data relating to newsletter subscriptions: data is kept until the subscriber or donor unsubscribes, via the functionality present on each of our newsletters,
  • Data relating to calls for applications: the maximum retention period is one year after the close of the call,

After this period, data may be anonymized and kept for statistical purposes. If this is not possible, the data will be destroyed.

5. Is your data shared with recipients and/or subcontractors?

Your data is for internal use only and is strictly confidential. They are intended for EU-MIND’s internal departments, for persons authorized to process them or for subcontractors appointed by the Foundation, in accordance with the purposes set out in point 1.

EU-MIND undertakes not to sell, give away or exchange your personal data.

6. Is your data transferred outside the EU?

Personal data relating to our communication and fund-raising activities are only hosted within the European Union.

In the case of data collected during calls for projects, it is transferred outside the European Union for 1) data storage (using Mailchimp, USA), and 2) evaluation of applications by the EU-MIND Scientific Council. The conditions for data processing within and outside the European Union are governed by strict rules in line with RGPD regulations.

7. Exercising your rights

In accordance with the French Data Protection Act of January 6, 1978 and the European Regulation of April 27, 2016 (RGPD),you may access your personal data, rectify it, request its deletion or exercise your right to limit the processing of your personal data. You can also object to the processing of your data and exercise your right to data portability.

Visit cnil.fr for more information on your rights.

To exercise these rights, or if you have any questions about the processing of your personal data under this system, please contact us:

  • By e-mail: dpo@eu-mind.org
  • By post at the following address Alzheimer Foundation, 101 rue de Tolbiac – 75013 Paris – France

If, after contacting us, you feel that your rights under the Data Protection Act have not been respected, you can lodge a complaint with the CNIL.


Note: In certain cases, the restriction of access to personal data by recipients during the retention period of personal data will make it impossible to process the file.






The EU-MIND Privacy Policy was updated on March 7, 2024.



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